The Huntington Study Group on Help 4 HD Live

The Huntington Study Group is a world leader in facilitating high-quality clinical research trials and studies in Huntington disease (HD). HSG has the first and largest HD clinical research network of over 400 active and compassionate investigators, coordinators, scientists and HD experts at over 100 HSG Credentialed Research Sites across the globe, dedicated to seeking treatments that make a difference and improving the quality of life and outcomes for families affected by HD.

Ray Dorsey, MD, MBA, is the chair of HSG. Ray is also a Professor of Neurology and Director of the Center for Human Experimental Therapeutics and Center for Health and Technology at the University of Rochester Medical Center. Ray investigates new treatments for movement disorders and improves the way care is delivered for individuals with Parkinson and Huntington diseases and other neurological disorders. As an academic neurologist, he is pleased to have devoted much of his professional activities and energies to Huntington disease and the Huntington Study Group. Since joining HSG, he has worked as a site investigator, served on the steering committee for five clinical studies and trials, and led the recently completed phase II clinical trial of PBT2 (Reach2HD) study. 

Heather Hare has been the Director of Communications & Outreach for HSG for one year this month. She holds a BA in print journalism from GWU and spent seven years as a newspaper reporter before making the switch to communications in 2005. She spent a decade at the helm of public relations for the University of Rochester’s Golisano Children’s Hospital. Heather focuses on communication and relationships with HSG members, friends, partners and trial and study participants and through the HSG website, printed materials and other communication tools. Her major focus has been on building relationships with families impacted by HD.